Tag Archive: Osteogenesis Imperfecta


Quick Update…

Hello.. how is everyone?

It feels good to be back here.


Thank you for the messages of support that we received both Privately and blog posts. On a gloomy day the kind words written were much-needed and gratefully received.

Lincoln has just this week started to take a few steps by himself. It has been a long road to recovery and we still have a way to go yet.
He is the bravest little boy I know and I am so proud of the way he is dealing with everything
He broke his femur in July closely followed by yet another break, his tibia this time early September
The poor little lad hasn’t been mobile for nearly 6 months and that’s been tough for a 4-year-old who’s trying to integrate with new friends at school from the confines of a wheelchair

However when Santa arrived on Christmas day he must have known the terrible time that Lincoln had endured as he certainly got spoiled this year.
So a great Christmas and New year was had by Mr and Mrs darkestangelica and the three little angels.

We enter into 2013 with positive attitudes as always and a glimmer of hope that the new treatment Lincoln will be starting in March will at least reduce his fracture frequency, strengthen his bones and (fingers crossed) be more him to be independently mobile for longer periods of time allowing him to be given a chance to experience kicking a ball and playing Tag in the playground with his friends,

Enjoy what we all take for granted at times.. Have some FUN!!

My intention is to start writing again real soon. I have missed my alter ego and I’m enthused by the prospect of her return.

Wishing you all a very Happy and Healthy New Year.

~~ Keep writing and keep smiling ~~ 

                                                                                                                                               XxxxXxxXxxX

 

Strong Spirit

Full filling our lives for almost four years

always making us laugh to help stop the tears

 

Your attitude to life engulfs us with pride

No sympathy wanted..  pity placed at one side

 

Your stunning blue eyes they sparkle like beads

revealing a determination with the will to succeed

 

I turn my head away from you racked with feelings of shame

Why can’t I be like you’

I want to scream and shout but there is no one to blame

 

You’re teaching me the way and helping me to find

that inner calm that you posses a welcomed piece of mind

 

You know how much I love you.. You know it’s cos I care

what you’ve been through already is put simply..  so unfair

 

Such a sensible boy with the strength of an Ox

If I had my way you’d be packed safe in a box..     :)  :)  x

 

A hero is someone who’s granted a gift enabling special powers

This describes you my son so blessed that you are ours

 

Always wearing a smile with a face full of hope

you never cease to amaze us with your ability to cope

 

I promise to always guide you help you follow your hearts desire

for I know you will achieve your goal to which you do aspire

New Blog

If you have a spare minute or two please take a look at my second blog that  I am creating.

It is very different to this one. I have taken the decision to open up a little more and reveal another side to me that involves my home and family life.

It is for an extremely good cause that is very close to my heart. I am using it to help raise awareness for the Brittle Bone Society & the Osteogenesis Imperfecta Foundation. My youngest son has the condition and at present we are waiting a diagnosis for our daughter.

Although still in the early stages with regards to its content I believe it’s worth a peek ..

I’ll be updating this blog in the next day or so.  I have  poems in the pipeline.

I’d like to take this opportunity to thank you all for the continued support and inspiring comments that I have received over the past few months. I look forward to visiting all your blogs and I apologise for sometimes not having the time to comment.

My free time Is quite limited.   A Saturday night when the children have gone to bed is when I get to  read blogs, be creative and update my blog. I do tend to get carried away though the time is now 8.30am Sunday and not a wink of sleep have I had.  **yawn** (the children are beginning to stir they’ve slept in a little longer than usual this morning giving me time to finish.    #Happy Days..

My ‘ME’ time is so precious, I would go crazy without it! :)   :)   I can always  sleep tonight!… xx  :)

Link to new blog:   http://tigeraven.wordpress.com/       **Thank you :)

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